Clinical Outcomes for Patients of the Cystic Fibrosis Center of WNY at Women & Children’s Hospital of Buffalo Among the Best in the US

Released: 12/9/2010

The Cystic Fibrosis Center of Western New York at Women & Children’s Hospital of Buffalo is among the highest performing centers in the United States according to data compiled by the National Cystic Fibrosis Foundation measuring the most relevant clinical outcomes for patients.

Measures of pulmonary and nutritional status are the strongest predictors of future health in people with cystic fibrosis, a life-shortening genetic disease that causes thick mucus in the lungs and trouble digesting food.  Data measuring lung function (FEV1) and body mass index (a nutritional indicator) for patients receiving care from the Cystic Fibrosis (CF) Center of WNY both are ranked among the highest performing centers nationally.

For the measure of lung function (FEV1), the percentage predicted for patients 18 to 29 years in 2009 (most recent data available) at Women & Children’s Hospital of Buffalo was 82.  The national median for this percentage related to lung function was 70.

The measure of body mass index for patients 20 years of age or older treated by the Cystic Fibrosis Center of WNY in 2009 was 23.3.  The national median for BMI was 21.9

For both measurements, the higher number value demonstrates better outcomes. The complete data will be available at www.cff.org soon.

Dr. Drucy Borowitz, the CF Center Director, stated, “We are certified by the National Cystic Fibrosis Foundation as a care, teaching and research center.  We strive to help people with CF live long and healthy lives.  We have employed quality improvement methods and family-centered care to help us achieve the best possible clinical outcomes for our patients.  We are also active participants in many research studies, and are at the forefront of some exciting new drugs that have the potential to change the course of CF”.

Other clinical care provided by the Lung, Cystic Fibrosis and Assisted Breathing Center:

- Evaluation and care management of children who need breathing assistance through use of CPAP, BiPap, mechanical ventilation, cough assist devices, and other therapies to improve airways clearance

- Pediatric pulmonologists and nurse practitioners with expertise in pediatric pulmonology

-A multidisciplinary team including respiratory therapists, a registered dietitian and a social worker who can assist with patients that have complex medical needs

- The only NYS designated Neonatal Apnea Program in WNY, providing management for infants who are discharged home on oxygen, apnea and bradycardia monitors.

- Collaboration with the Division of Genetics to provide follow-up for infants with positive newborn screens for cystic fibrosis

- The Pediatric Pulmonary Diagnostic Laboratory provides diagnostic testing for community-based providers, including Exercise testing, Pulmonary function testing and Sweat testing

To contact the Cystic Fibrosis Center of WNY directly, please call (716) 878-7524.